5 Things You Didn't Know About Emma Heming: From Supermodel To FTD Caregiver Advocate

Emma Heming Willis, once a high-fashion model and now a dedicated entrepreneur, has redefined her public identity in recent years. As of late 2024 and early 2025, her life is primarily centered around her role as a fierce advocate and devoted caregiver for her husband, the iconic actor Bruce Willis, who was diagnosed with frontotemporal dementia (FTD). Her candid and open approach to discussing the harsh realities of FTD, while simultaneously sharing messages of hope and joy, has made her a powerful voice in the global dementia community.

This article dives deep into the multifaceted life of Emma Heming Willis, exploring her modeling career, her entrepreneurial ventures, and her crucial, current work as a caregiver advocate, providing the most up-to-date information on her journey and future plans, including a forthcoming book.

Emma Heming Willis: A Complete Biography and Profile

Emma Frances Heming Willis (née Heming) is a British-American model, actress, and businesswoman who has established a successful career across multiple industries before taking on her current, most public role as a caregiver.

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• Full Name: Emma Frances Heming Willis (née Heming)
• Date of Birth: June 18, 1978
• Age (as of 2025): 46
• Place of Birth: Malta (British-American Nationality)
• Height: Approximately 5’10” (178 cm)
• Spouse: Bruce Willis (Married 2009)
• Children: Mabel Ray Willis (b. 2012) and Evelyn Penn Willis (b. 2014)
• Parents: Joy Heming
• Notable Career: International fashion model, actress, entrepreneur, author, and caregiver advocate.
• Business Ventures: Founder & CEO of CocoBaba; Co-founder & Chief Impact Officer of Make Time Wellness.

Heming's modeling career began in the late 1990s and saw her grace the runways and campaigns of major fashion houses. She transitioned her fame into business, launching two successful wellness brands, showcasing her entrepreneurial spirit long before her current focus on advocacy.

The Unexpected Role: Caregiver and FTD Advocate

The most significant and public chapter of Emma Heming Willis's life began with the health struggles of her husband, Bruce Willis. Initially diagnosed with aphasia in 2022, the family later announced in 2023 that his condition had progressed to frontotemporal dementia (FTD).

Instead of retreating from the public eye, Emma chose to step into the spotlight as an advocate. Her mission is two-fold: to raise awareness about FTD, a lesser-known and often misdiagnosed form of dementia, and to provide a relatable voice for the millions of unpaid caregivers worldwide.

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Sharing the "Hard" Reality of FTD

Emma has been remarkably candid about the emotional and logistical toll of caring for a loved one with FTD. She has shared that celebrating holidays and navigating daily life now presents a "hard" new reality. Her interviews and social media posts often focus on the importance of self-care for the caregiver, acknowledging the grief and emotional exhaustion that comes with the role.

She has openly discussed the early signs of Bruce's condition, helping others to identify symptoms and seek support. Her transparency demystifies the disease and combats the isolation felt by many families facing a similar diagnosis.

A Message of Hope and Joy

Despite the challenges, a core message of Emma's advocacy is the importance of finding moments of joy and hope. She has shared that her love story with Bruce "has only grown" through this journey, highlighting that a diagnosis, while devastating, does not erase the love and connection within a family.

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In one particularly poignant message, she emphasized the need to find "beauty and light" in the midst of darkness, a sentiment that resonates deeply with her followers and fellow caregivers. She actively encourages other caregivers to seek out support and community, transforming her personal struggle into a platform for collective strength.

The Entrepreneurial Spirit: CocoBaba and Make Time Wellness

Before her full-time dedication to caregiving advocacy, Emma Heming Willis built a substantial career as an entrepreneur, leveraging her background in health and wellness. Her business ventures demonstrate a commitment to natural, purposeful products and a focus on well-being.

CocoBaba: Skincare Rooted in Motherhood

Founded in 2016, CocoBaba is Emma's vegan skincare company, specializing in products for pregnant women and new mothers. The brand's name is a nod to her personal experience, as she used coconut-based products during her pregnancies with her daughters, Mabel and Evelyn. This venture showcases her desire to create safe, effective, and natural products for a vulnerable demographic.

Make Time Wellness: A Focus on Self-Care

In addition to CocoBaba, Emma is the co-founder and Chief Impact Officer for Make Time Wellness. This role further solidifies her commitment to promoting self-care, a theme that has become even more crucial in her life as a caregiver. The company aligns with her public advocacy by emphasizing that taking time for one's own well-being is not a luxury, but a necessity.

Her work in the wellness space provides a strong foundation for her caregiving advocacy, as she can speak from experience about the importance of prioritizing mental and physical health in demanding circumstances.

Future Plans: A Caregiving Guide Book in 2025

Looking ahead, Emma Heming Willis is set to further cement her role as a caregiving thought leader with the publication of her first book. The untitled guide, which is currently slated for release in 2025, will draw upon her experiences tending to Bruce Willis.

This forthcoming book is highly anticipated within the FTD and broader caregiving communities. It is expected to offer practical advice, emotional support, and a raw, honest look at the challenges and unexpected moments of beauty found on the caregiving journey.

The guide is not just a memoir; it is intended to be a resource for others who are navigating similar paths with loved ones suffering from neurodegenerative diseases. By sharing her personal story and the strategies she has developed, Emma hopes to provide a roadmap and a sense of solidarity for countless families. Her book will undoubtedly become a key text for those seeking guidance on how to manage the emotional and logistical complexities of long-term caregiving.

The Willis Family Bond: A Unified Front

One of the most inspiring aspects of Emma Heming Willis's story is the incredible unity of the Willis family. She maintains a close, supportive relationship with Bruce's ex-wife, actress Demi Moore, and their three adult daughters: Rumer, Scout, and Tallulah.

This blended family dynamic—often referred to as a ‘modern family’—has provided a powerful example of co-parenting and collective support in the face of a devastating illness. They have all come together to support Bruce, ensuring he is surrounded by love and stability. This unified front is a testament to Emma's ability to foster strong, healthy relationships and prioritize the well-being of her entire family.

Emma Heming Willis has successfully transitioned from a celebrated model to a compassionate and influential public figure. Her dedication to her family, her entrepreneurial drive, and her tireless advocacy for frontotemporal dementia awareness make her one of the most compelling and inspiring voices in the public sphere today. As her book release approaches, her impact on the global caregiving community is only set to grow.